We are building a secure national omics data infrastructure, enabling the use of human genome data for research purposes while preventing data misuse.
Omics data have the potential to revolutionise health care. Here we show how GHGA is an integral part of this process.
GHGA, TMF e. V. and other institutions have submitted a joint statement on the Federal Ministry of Health's draft bill for an ordinance on the Genome Sequencing Model Project in accordance with Section 64e(12) of the SGB V.
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Patient involvement can help to focus research and healthcare to the needs of the patients. In this episode Anne Müller relates her experiences in this field.
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As an important milestone on our way to launch the GHGA Archive, Central-to-Data Hub Bilateral Contracts have been signed between the DKFZ and TU Dresden, and between the DKFZ and EKUT.
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15 Mai 2024
Lorenz Grigull from the Bonn Center for Rare Diseases (ZSE Bonn) will talk about "The Path to Diagnosis, Misdiagnoses, and Pattern Recognition in Medicine" at the GHGA Lecture Series. Register now!
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27 - 28 May 2024
The upcoming conference on "Functional Epigenomics", organised by GHGA member Jörn Walter, features an outstanding line-up of speakers, including GHGA members Oliver Stegle, Joachim Schultze and Philip Rosenstiel. Registration is now open!
Learn moreGHGA is tightly embedded and connected to national and international infrastructures and initiatives. It will be operated as a German national node of the federated European Genome-Phenome Archive (EGA).
GHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, eight workstreams were formed.
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"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."
